{"id":5310,"date":"2024-08-25T13:34:30","date_gmt":"2024-08-25T11:34:30","guid":{"rendered":"https:\/\/maedchen-frau-dame.de\/?page_id=5310"},"modified":"2024-08-25T13:51:29","modified_gmt":"2024-08-25T11:51:29","slug":"meine-neue-brust-2-2-2-4","status":"publish","type":"page","link":"https:\/\/maedchen-frau-dame.de\/?page_id=5310","title":{"rendered":"Seltene Erkrankung NMOSD"},"content":{"rendered":"<p>[vc_row css=&#8220;.vc_custom_1628512621251{margin-right: 24px !important;margin-left: 24px !important;}&#8220;][vc_column width=&#8220;2\/3&#8243; css=&#8220;.vc_custom_1550819706297{margin-right: 10px !important;margin-left: 10px !important;}&#8220;][vc_single_image image=&#8220;5311&#8243; img_size=&#8220;medium&#8220; alignment=&#8220;center&#8220; css_animation=&#8220;appear&#8220;][vc_column_text css=&#8220;.vc_custom_1724585428237{margin-bottom: 2px !important;border-bottom-width: 2px !important;padding-bottom: 2px !important;}&#8220;]Werbebeitrag Patientengeschichte[\/vc_column_text]<div class=\"wpb_content_element  vc_custom_1724585453318\"><style type=\"text\/css\" scoped><\/style><header id=\"ut_header_6a044976e8a72\" class=\"section-header pt-style-7 header-left\"><h2 class=\"section-title\"><span>Seltene Erkrankung NMOSD: Warum Aufkl\u00e4rung so wichtig ist<\/span><\/h2><\/header><\/div>[vc_column_text]<\/p>\n<p class=\"p1\"><strong>Die Neuromyelitis-optica-Spektrum-Erkrankungen (NMOSD) sind seltene und schwerwiegende Autoimmunerkrankungen, bei denen das Immunsystem Sehnerven und R\u00fcckenmark angreift. Eine fr\u00fche Diagnose ist lebenswichtig. Doch wie langwierig diese sein kann, zeigt das Beispiel von Sabrina Teifel. Eine Geschichte \u00fcber Hoffnung und Hartn\u00e4ckigkeit.<\/strong><\/p>\n<div class=\"page\" title=\"Page 4\">\n<div class=\"section\">\n<div class=\"layoutArea\">\n<div class=\"column\">\n<p>An einem kalten Winterabend im Februar 2017 traten bei Sabrina Teifel zum ersten Mal Symptome auf. Wie aus dem Nichts machten sich bei der jungen Frau aus einer kleinen Gemeinde im bayrischen Chiemgau Taubheitsgef\u00fchle be\u00ad merkbar. Als diese am n\u00e4chsten Morgen durch ein unangenehmes Kribbeln verst\u00e4rkt wurden, wand\u00ad te sie sich an ihren Hausarzt.<br \/>\nDer lie\u00df zwar einen m\u00f6glichen Schlaganfall im Krankenhaus ausschlie\u00dfen, hielt das empfohlene MRT jedoch f\u00fcr \u00fcberfl\u00fcssig. \u201eEr und auch ein zweiter unabh\u00e4ngiger Hausarzt waren der festen \u00dcberzeugung, dass meine Symptomatik psychosomatisch sei und ich mir die Taubheitsgef\u00fchle nur einbilde\u201c, erinnert sie sich.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<h3 class=\"p2\">Nach Monaten endlich eine Diagnose \u2013 die falsche<\/h3>\n<div class=\"page\" title=\"Page 4\">\n<div class=\"section\">\n<div class=\"layoutArea\">\n<div class=\"column\">\n<div class=\"page\" title=\"Page 4\">\n<div class=\"section\">\n<div class=\"layoutArea\">\n<div class=\"column\">\n<p>Obwohl sich die Symptome \u00fcber die folgenden Monate im\u00ad mer weiter verschlechterten, war eine psychotherapeutische Begleitung das Einzige, was der Patientin angeboten wurde. Doch in ihrem Innersten wusste Sabrina, dass etwas nicht stimmte. Erst als Sehst\u00f6rungen auf dem linken Auge hinzu\u00ad kamen, die zur v\u00f6lligen Erblindung f\u00fchrten, wurde sie endlich ins MRT geschickt. Die Diagnose Multiple Sklerose (MS) war eine Erleichterung. \u201eAuch wenn die Diagnose falsch war \u2013 wenigstens hatte ich einen Namen f\u00fcr meine Beschwerden\u201c, sagt sie heute. Da sowohl ihre Gro\u00dfmutter als auch der Vater MS hatten, erschien ihr die Diagnose schl\u00fcssig. Doch die Be\u00ad handlung schlug nicht richtig an. Zwar bildeten sich die Seh\u00ad st\u00f6rungen infolge hoher entz\u00fcndungshemmender Medikamente vollst\u00e4ndig zur\u00fcck. \u201eDaf\u00fcr bekam ich im weiteren Verlauf schwere Sch\u00fcbe mit L\u00e4hmungserscheinungen. Zudem musste ich mich andauernd erbrechen\u201c, erz\u00e4hlt sie. \u201eIch konnte mich nur noch mit Rollator bewegen.\u201c Vier lange Jahre und unz\u00e4hlige Behandlungen sp\u00e4ter wurde ein neuer Chefarzt der Neurologie auf ihren Fall aufmerksam \u2013 ihm kamen Zweifel, er forschte nach und stellte endlich die richtige Diagnose: NMOSD.<\/p>\n<h3 class=\"p2\">Ein Impuls zur Umkehr<\/h3>\n<div class=\"page\" title=\"Page 4\">\n<div class=\"section\">\n<div class=\"layoutArea\">\n<div class=\"column\">\n<p>F\u00fcr Sabrina war die Diagnose NMOSD Schock und Segen zugleich. Ein Wendepunkt in ihrem Leben: \u201ePl\u00f6tzlich hat es Klick gemacht. Ich habe f\u00fcr mich beschlossen, dass ich nur noch auf mein Bauchgef\u00fchl h\u00f6re. Ich entscheide \u00fcber meinen K\u00f6rper, \u00fcber mein Leben\u201c, erz\u00e4hlt sie. Jahrelang hatte die heute 38\u00adJ\u00e4hrige alles zusammengehalten, sich um Job, Haushalt und Angeh\u00f6rige gek\u00fcmmert. Und dann der Befreiungsschlag: \u201eIch wusste, ich will das so nicht mehr. Ich habe kurzfristig meine Ehe hingeschmissen, bin ausgezogen, hab meinen Job gek\u00fcndigt.\u201c Heute geht es ihr gut, ihr Mann ist wieder an ihrer Seite und sie leben an ihrem Wunschort am Chiemsee. \u201eJa, ich habe die Diagnose, muss regelm\u00e4\u00dfig meine Medikamente bekommen. Aber es hat sich auch eine Menge zum Positiven ver\u00e4ndert\u201c, freut sie sich.<\/p>\n<h3 class=\"p2\">Krankheitsverarbeitung durch Resilienz<\/h3>\n<div class=\"page\" title=\"Page 4\">\n<div class=\"section\">\n<div class=\"layoutArea\">\n<div class=\"column\">\n<p>Bei der Verarbeitung ihrer Krankheitsgeschichte haben Sabrina wichtige psychotherapeutische Erfahrungen geholfen, die sie im Laufe ihres Lebens gesammelt hat: \u201eIch bin sehr reflektiert\u201c, sagt sie. \u201eWenn ich an einem Tiefpunkt angekommen bin, wei\u00df ich, dass es wieder bergauf geht. Nichts ist f\u00fcr immer, ist mein Glaubenssatz.\u201c Ebenfalls wichtig f\u00fcr sie direkt nach der Diagnose war ein Gespr\u00e4chsangebot mit einem Psycho\u00ad Onkologen auf der neurologischen Station. Was sie anderen Betroffenen noch raten w\u00fcrde? \u201eH\u00f6rt auf euren K\u00f6rper und wechselt den Arzt, wenn ihr euch nicht wahrgenommen f\u00fchlt. Bleibt hartn\u00e4ckig und lasst nicht andere \u00fcber euren K\u00f6rper entscheiden\u201c, empfiehlt sie. Mit ihrer Geschichte will sie noch mehr Aufmerksamkeit f\u00fcr ihre Erkrankung erreichen: \u201eIch w\u00fcnsche mir, dass mehr Menschen \u00fcber NMOSD Bescheid wissen und dass Betroffene schneller die richtige Diagnose und Behandlung erhalten\u201c, sagt Sabrina..<\/p>\n<div class=\"page\" title=\"Page 4\">\n<div class=\"section\">\n<div class=\"layoutArea\">\n<div class=\"column\">\n<div class=\"page\" title=\"Page 3\">\n<div class=\"section\">\n<div class=\"layoutArea\">\n<div class=\"column\">\n<p>Mehr Informationen unter:<\/p>\n<p><a href=\"https:\/\/www.nmosd-in-focus.com\/de\" target=\"_blank\" rel=\"noopener\">www.nmosd-in-focus.com\/de<\/a><\/p>\n<p>Mit freundlicher Unterstu\u0308tzung der Amgen GmbH, Mu\u0308nchen<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<p>[\/vc_column_text][vc_empty_space][vc_btn title=&#8220;zur\u00fcck&#8220; style=&#8220;custom&#8220; custom_background=&#8220;#aa3458&#8243; custom_text=&#8220;#ffffff&#8220; size=&#8220;lg&#8220; align=&#8220;left&#8220; css_animation=&#8220;appear&#8220; custom_onclick=&#8220;true&#8220; link=&#8220;url:http%3A%2F%2Fwww.maedchen-frau-dame.de|||&#8220;][\/vc_column][vc_column width=&#8220;1\/3&#8243; css=&#8220;.vc_custom_1491321626331{margin-right: 24px !important;margin-left: 24px !important;}&#8220; offset=&#8220;vc_hidden-xs&#8220;][vc_empty_space height=&#8220;00px&#8220;][vc_btn title=&#8220;zur\u00fcck&#8220; style=&#8220;custom&#8220; custom_background=&#8220;#aa3458&#8243; custom_text=&#8220;#ffffff&#8220; size=&#8220;lg&#8220; align=&#8220;right&#8220; css_animation=&#8220;appear&#8220; custom_onclick=&#8220;true&#8220; link=&#8220;url:http%3A%2F%2Fwww.maedchen-frau-dame.de|||&#8220;][vc_empty_space height=&#8220;190px&#8220;][vc_column_text css=&#8220;.vc_custom_1724585666931{padding-top: 15px !important;padding-right: 15px !important;padding-bottom: 15px !important;padding-left: 15px !important;background-color: #e0e0e0 !important;border-radius: 2px !important;}&#8220;]<strong>Kontakt<\/strong><\/p>\n<p>Amgen GmbH<br \/>\nRiesstra\u00dfe 24<br \/>\n80992 M\u00fcnchen<\/p>\n<p><a href=\"https:\/\/www.nmosd-in-focus.com\/de\" target=\"_blank\" rel=\"noopener\">https:\/\/www.nmosd-in-focus.com\/de<\/a>[\/vc_column_text][\/vc_column][\/vc_row]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[vc_row css=&#8220;.vc_custom_1628512621251{margin-right: 24px !important;margin-left: 24px !important;}&#8220;][vc_column width=&#8220;2\/3&#8243; css=&#8220;.vc_custom_1550819706297{margin-right: 10px !important;margin-left: 10px !important;}&#8220;][vc_single_image image=&#8220;5311&#8243; img_size=&#8220;medium&#8220; alignment=&#8220;center&#8220; css_animation=&#8220;appear&#8220;][vc_column_text css=&#8220;.vc_custom_1724585428237{margin-bottom: 2px !important;border-bottom-width: 2px !important;padding-bottom: 2px !important;}&#8220;]Werbebeitrag Patientengeschichte[\/vc_column_text][vc_column_text] Die Neuromyelitis-optica-Spektrum-Erkrankungen (NMOSD) sind seltene und schwerwiegende Autoimmunerkrankungen, bei denen das Immunsystem Sehnerven und R\u00fcckenmark angreift. Eine fr\u00fche Diagnose ist lebenswichtig. Doch wie langwierig diese sein kann, zeigt das Beispiel von [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-5310","page","type-page","status-publish","hentry"],"rankMath":{"parentDomain":"maedchen-frau-dame.de","noFollowDomains":[],"noFollowExcludeDomains":[],"noFollowExternalLinks":false,"featuredImageNotice":"Das angezeigte Beitragsbild sollte mindestens 200x200 px gro\u00df sein, damit Facebook und andere Social-Media-Websites es 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